We had another follow-up for Mia with her regular eye doctor today. Her uveitis is recurring, and since it is happening within 1-2 weeks of stopping the steroid eye drops, this is considered part of the same flare up. This means that the inflammation never actually went away and that it was able to flare up again once the drugs were out of her system. The inflammation got bad again, so we are back to steroid eye drops every hour, and dilating drops 3 times a day until the inflammation starts to go down. We have another follow-up in a week.
The good news is that her eye pressure is normal for now, so we don’t have to add in a third eye drop to treat that. The bad news is that if it takes her longer than 2 months to get over this episode, the next step would be to try oral medications like methotrexate to get things under control. I’m really hoping we can avoid that because there are many more possible side effects.
This set back is a real bummer. We had a total of 4 days where we didn’t have to do any drops at all. That was really nice. It’s hard to live by an alarm that goes off every hour, and sometimes every 5 minutes when she needs multiple drops. She is still being such a trooper with all the daily interruptions she gets, but I know sometimes she gets frustrated. I’m thankful that the drops worked well before, so I hope that continues.